Back Up launches Family Outreach & Support Coordinator role

Back Up launches Family Outreach & Support Coordinator role

We’re thrilled to announce that Andrew Dickinson has taken over a new role at Back Up as our Family Outreach and Support Coordinator.

This unique new role, which is funded by a grant from the Baxter International Foundation, is a first point of contact for family members of people with spinal cord injury, providing much needed support and advice.

In his role, Andrew will coordinate a team of volunteers – all of whom have a relative or partner with an injury – to visit spinal centres, run information sessions and connect with family members on relative days. Back Up will also be piloting a new telephone support service for families too.

“With this new role in place, we will be able to connect with families as soon as possible after their loved one has a spinal cord injury,” said Andy Masters, head of Back Up’s Outreach and Support services. “At this point, many family members can feel guilty about asking for help because they feel the focus shouldn’t be on them. Our new Family Outreach and Support Co-ordinator will proactively reach out to families, make those all important early connections to offer support and refer them through to our other specialist services.”

Many family members suffer feelings of depression and isolation after the injury of a loved one. Our research shows that 33% of parents are clinically depressed, and 76% of siblings experience feelings of neglect and isolation.

Andrew knows first hand how vital this support for family members will be. He first became aware of Back Up when a family member of his was involved in a car accident in 2009 which caused a permanent spinal cord injury.

“Immediately after Sam’s accident it was hard to imagine that life could ever be the same again. We were plunged headlong into this whole new world, caught spinning in a maelstrom of new terms like “autonomic dysreflexia.”  We were lost and travelling without a map.

However, what Back Up gave us was the reminder that just because we currently felt lost didn’t mean that we were the first ones to walk this road. What is so amazing about this charity is that they recognise that this sort of injury affects everyone. My entire family experienced a trauma in that car accident and every one of us could benefit from support.

That’s why I feel so excited to take on this role within Back Up as the Family Outreach and Support Coordinator. I’m looking forward to building relationships with families affected by this injury, working with our colleagues in the NHS to develop support within spinal units and creating a space for family members to share and learn from each other.

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Andrew, Back Up’s new Family Outreach & Support Coordinator

This is something that has never been done before, our estimates suggest that there are 4,000 new family members encountering this world with every passing year and I am very much aware of the monumental nature of the task ahead. I can’t wait to get stuck in.”

If you’re a family member and need support, please email Andrew (Andrew@backuptrust.org.uk) or call him at our offices on 020 8875 1805.

Volunteering at Back Up | How can you get involved?

Volunteering at Back Up | How can you get involved?

We believe that all of our team of over 400 volunteers make a unique and vital contribution to our work. Back Up was founded by volunteers and volunteering remains at the heart of everything we do. Our volunteers govern Back Up, run wheelchair skills sessions, group lead courses, raise awareness and funds, and support and develop our work in so many different ways.

If you’d like to become a Back Up volunteer, here are three options you could consider: become a mentor, volunteer as a nurse or personal assistant (PA) on one of our courses, or volunteer in the office.

Mentoring

If you or a loved one has a spinal cord injury, you could use your own personal experience to support others in a similar situation as a volunteer mentor.

Passing on those vital words of wisdom to someone adjusting to life post injury can be a life-changing experience for both you and your mentee.

“I have been a family mentor with Back Up for almost six years. When my son had his accident 13 years ago there was nobody to talk to when I needed to, as the mentoring service was not in operation at that time.

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Caroline, Family Mentor

Being able to offer some of my time, share experiences and listen to other parents to support them through times of adjustment is very rewarding for me. Every call is different, every case is different yet we all go through the same pain.

Volunteering for Back Up is a way for me to help the charity to reach out and transform lives of families as well as those who are injured.” (Caroline, Family Mentor)

To find out more about becoming a mentor, please contact Polly by email (Polly@backuptrust.org.uk) or give her a call on 020 8875 6721.

Nurse or Personal Assistant (PA)

Back Up runs a range of residential courses for people with spinal cord injury to help them rebuild confidence and independence. To ensure that our participants can enjoy themselves and get the most out of our courses, we rely on the vital support of Nurses and Personal Assistants (PAs).

The role involves assisting with the personal care needs of spinal cord injured participants and volunteers, supporting participants to develop their skills and independence, and contributing to the positive experience of the group as a whole.

Getting the chance to see people grown in confidence – and being a part of that transformation – can be a truly rewarding experience. It also offers a unique chance to work with people with spinal cord injury outside a clinical environment whilst having plenty of fun along the way!

“Volunteering with Back Up has given me fantastic experiences and the knowledge that I’m helping to make a big difference. Seeing how the participants grow and develop on courses is so amazing and makes me feel really proud to be involved. Being a PA on courses has also improved my employability. Volunteering looks great on anyone’s CV, but volunteering with Back Up is a real plus.’’ (Amanda, PA)

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Amanda (2nd from right) on the way to Sweden with the Ski Karting group members

To find out more about volunteering as a Nurse or PA, please get in touch with Merryn by email (Merryn@backuptrust.org.uk) or give her a call on 020 8875 6741.

Office Volunteer

We are always on the lookout for volunteers to help out with admin and marketing support at our offices based in Wandsworth, South West London. Whether you know your way around an excel spreadsheet, have an eye for design, or some regular time to help out with general administration, we would love to hear from you!

Whilst you may not be out on the front line delivering the services, you will have the opportunity to do invaluable behind-the-scenes work that ensures the smooth running of our services and fundraising events. You’ll also have the opportunity to develop professionally and work alongside a bright and passionate team who will ensure that your time spent in the office is enjoyable and fulfilling.

‘‘I really look forward to going into the office and it has been an ideal stepping stone back to the world of work, but with the added  ‘safety net’ that I am working alongside colleagues who understand what it is like to have a spinal cord injury and the complications that go with it. I feel valued and supported and it has been excellent for building up my confidence, gaining new friendships and adding structure to my week.’’  (Tracy, Office Volunteer)

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Tracy at out offices in Wandsworth, South London

To find out more about our office volunteering opportunities, please contact Kat by email (Katherine@backuptrust.org.uk) or give her a call on 020 8875 6749.

You can also visit the volunteering section of our website to see all our other volunteer roles.

Andreea’s Q & A: Volunteering as a corporate buddy

Andreea’s Q & A: Volunteering as a corporate buddy

How did you first become involved with Back Up?

In November 2015, I received an email from my company asking for people to volunteer as Buddies on Back Up’s Ski Karting course in Sweden. I liked the idea but two things held me back initially:

  1. I knew nothing about spinal cord injury – I had never even met someone with a spinal cord injury. So I felt completely inadequate for the role – what could I offer Back Up and the participants?
  2. It was a busy time at work and I didn’t think my manager would let me take an extra week off.

But I was still interested so I applied on the last day before the deadline. Luckily, my boss is a snowboard fanatic and understood the benefits of the course so he happily signed off on me taking the week to volunteer. (He just came back earlier this year from Back Up’s Colorado Sit Ski course where he also went as a Buddy – so I managed to get him hooked on Back Up too!)

So you started off as a corporate buddy then became a regular volunteer. What prompted that decision?

The energy, the positive vibes, the amazing team work and the friendships I got out of the Sweden Ski Karting course were the main reasons behind my decision to continue volunteering with Back Up. That week in Sweden I felt I really contributed by just being myself and bringing a positive attitude. I learned from others, listened to what they needed, helped out wherever I could and had fun with everyone. It was quite an intense schedule: from coffee rounds in the morning at 7am, to going through the skiing schedule, to afternoon spa sessions and socialising till late. But I never felt tired.

My biggest worry was that I might hurt or offend someone I was actually trying to help by offering assistance. Was there a protocol? I didn’t want to be rude and do things for people that they’d prefer to do themselves. Thankfully, one of the volunteer nurses gave me the best advice at that point and said that if you’re not sure, just ask.

Following that discussion, I felt much more confident like I was part of a very well-functioning machine. And after a while, I felt like I didn’t even notice that some people were using a wheelchair. I just stopped seeing the chair and started seeing the person.

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Andreea (left) with group members on Sweden Ski Karting course

After the Sweden Ski Karting course, I decided I wanted to do another course with Back Up as a buddy, to get to know some more incredible people and gain more experience so I could get trained up as a group leader.

I decided to volunteer on the Belfast City Skills course in August 2016. What really touched me was the progress I saw in the participants over the duration of the course. Everyone felt more independent and left with renewed self-confidence because of the skills they discovered (from balancing on their back wheels, to going down flights of stairs, to pushing with one hand while holding a drink – everyone learned something new and useful). Belfast is also a beautiful city and we had a very knowledgeable guide to take us around.

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Andreea (right) with group members on Belfast City Skills course

What did you get out of your volunteering experience?

On a personal level, I learned a lot about the challenges people with a spinal cord injury face in daily life. I also gained self-confidence as I found out that I can try new things and do them well. I also made lots of wonderful friendships.

As a Buddy, I had to use my initiative a lot to recognise when tasks needed to be completed and when participants required assistance. This has transferred to my professional life as I can see when colleagues need my advice and where I can add value to a discussion.

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The Belfast City Skills course group

Do you think more companies should create opportunities for their employees to volunteer?

Yes as it gives people a chance to get to know each other in a more relaxed environment where job titles don’t matter. You can also develop skills that are applicable to your job, but that you don’t get to explore so much on a daily basis. These will definitely benefit the company as people feel they are more valued when given opportunities to learn and grow. This year, we have 3 teams taking on the Back Up Snowdon Push. It just shows that people from different departments can come together and work as a team, and that they are eager to volunteer – if given the opportunity.

It’s fantastic to have this support for our buddy programme from BMO. The combination of a financial contribution from a company and the employees volunteering their time ensures that Back Up can continue to offer these life-changing courses. If you’d like to volunteer as a corporate buddy, please contact our Corporate Partnerships Manager, Sean McCallion,  on 020 8875 6747 or email sean@backuptrust.org.uk.  

Richard’s Story | Giving people a new lease of life

Richard’s Story | Giving people a new lease of life

Richard, aged 64, is a long standing volunteer power chair trainer and mentor. He has an undeniable passion for volunteering and enabling people to make positive changes in their lives. Seeing the difference when they break through a barrier or achieve a goal is a satisfying feeling, one that never gets old for Richard.

‘One of the most rewarding things is seeing people develop. When I first meet patients in the hospital, you see a lot of fear in them. And I think that’s how I must have been in those days. But you take them through a power chair training session and it makes a big difference. Then you meet them further down the line, and it’s great to see how far they’ve come on and what they’ve achieved.’

Richard first got involved with Back Up in 2009 during a visit to the National Spinal Injuries Centre, Stoke Mandeville. Whilst he was there, he heard a talk from a staff member about our mentoring service. When Richard sustained his spinal cord injury in 1980 as a result of a road traffic accident, mentoring wasn’t yet available. He saw the huge benefit the service could offer to people with a spinal cord injury and family members, supporting them to overcome challenges in daily life and work towards personal goals.

Luckily, a training weekend for new mentors was taking place the following weekend and a space had opened up. After he completed the training, he was matched with his first mentee: a man with a complete injury at a similar level to Richard. He’d had to move into a care home following his rehabilitation, and Richard mentored him during those difficult early days.

‘After we finished our mentoring relationship, Back Up arranged for me to meet him and his family. We decided to meet at an art gallery, as he was really fond of art. It was such a milestone for him to leave the care home for the first time. Meeting him and seeing what a change had taken place in him was wonderful.’

Richard became one of our first power chair skills trainers in 2011. He is among a team of 46 trainers that travel throughout the UK delivering sessions at all 11 spinal injury units. He also regularly leads the skills sessions on our residential courses. He gets to see first hand how our sessions give people a new lease of life:

‘Some of the participants on wheelchair skills sessions at spinal centres attend a couple of times whilst they’re there. I’ve seen many of them develop over that time, learn new skills and gain confidence. As a trainer, that’s really amazing to see.’

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Richard teaching other trainers on our train-the-trainer course

Richard speaks most fondly of his time as a skills trainer on our Over 50s courses. He believes that age is no barrier to a fulfilling life.

‘You get people on the Multi Activity courses who are 80 years old and when they’re told that they’ll be doing kayaking, abseiling down a rock face, they turn around and say ‘no we can’t do that’. But when they actually do it, it’s amazing how much fun they have and what they get out of the experience.’

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Richard (left) on Over 50s course with Calvert Trust instructor and course participant

It’s moments like these that are the real payoff for any volunteer – getting to see people grow and develop, learning more about what life still holds for them.

‘After 3 to 4 days on a Multi Activity course, you can start to see a change in people. The night before the last day we often all have a chat about what people have got out of the course. It can be quite touching.

Sometimes people get very emotional because they’ve achieved so much. They might not have been out of the house for months. They’ve lost contact with other people who have a spinal cord injury and now they’re doing all kinds of things!’

Richard is a truly special volunteer and we hope that he will continue to show people how much is still possible after spinal cord injury. He knows that it’s not a life ending, just a new one beginning.

To find out about all our volunteering opportunities, please contact Merryn (Merryn@backuptrust.org.uk) or give her a call on 020 8875 6741.